Funding Research.
Building a Community.
Finding a Cure.
Dedicated to understanding and supporting those affected by Mosaic Variegated Aneuploidy (MVA) syndrome
We are the only organisation in the world dedicated to Mosaic Variegated Aneuploidy (MVA) an ultra-rare genetic condition affecting fewer than 50 people worldwide.
Our charity is committed to funding focused research into MVA, ultimately enabling us to find treatments and a cure, whilst building a community of patients and their families along the way.
George’s Story
When George was diagnosed with Mosaic Variegated Aneuploidy at just two years old, his family was told there were no treatments, no support networks, and almost no information available.
His journey inspired the creation of the MVA Society - to ensure no family faces this diagnosis alone again.
Our impact at a glance
£200,000 raised of a
£250,000 research funding
target - and counting
4 active research projects
underway - 2 in the UK, 1 in Spain
and 1 in the USA
Fewer than 50 known lives
affected globally - and each one
matters deeply.
For some, its a first marathon. For others, its more of wanting to experience 26.2 miles of awesomeness again.
The MVA Society aims to find a treatment for this condition and prevent related cancers. Such projects are not a sprint – they are a marathon. So, like our 5 budding athletes, its simply a question of one step at a time, grit your teeth and get cracking.
You can donate via the JustGiving page here. All and any donations are very welcome.
