Fundraising
We are raising funds to enable research into this ultra-rare condition. Currently, there are NO treatment options available.
Our aim is to find a treatment that will improve the lives of those affected with MVA.
If you can and would like to donate, please click the button opposite.
London Marathon 2025 – Sunday 27th April
On Sunday 27th April, Tash, Saj and JB will join 50,000 other runners for the London Marathon. The difference though is that these 3 lucky runners are running for the MVA Society.
Between us, we are hoping to raise £15,000 to support the first stages of this research strategy. But like running a marathon, to find a treatment you have to simply put one foot in front of the other and keep going.
Please do make a donation to this worthy cause if you can. And please do try and come and support us on the day! Post run/walk drinks and pasta will be at Shepherds Market after the run! Join us there too if you can.
Tash Cornwell
It’s Tash’s first marathon! Her favourite running distance is the 100m sprint so getting the miles under her belt is key for her over the next few months. However, with a structured training programme now in place she is in a great spot to get those long runs behind her and really enjoy the day! Her target is a hugely respectable sub 4 hours! C’mon Tash!!!
Saj Shah
Speedy Saj Shah is a natural when it comes to marathons! Maybe it’s his Kenyan roots? Or maybe it’s the energy he constantly exudes? Either way he is the MVA front runner! What’s out Mo Farah….here comes Saj!
Jonathan ‘JB’ Bracey
JB – the old man making up the team – is hoping to hobble around on his 1 new and 1 knackered hip. The joys of being in your 50’s. But, like last year, walking around a fabulous course in your home City isn’t really a hardship when you get support like you get in London. Aiming for sub 8 hours. You may need to bring a book if you want to wait to see JB hobble by!
Rilee Humphries
“Thank you for donating Tanner Pharma’s President Award to the MVA Society. This was our very first donation and so a very special one for us.”
TannerPharma
“TannerCares! Thank you for your extremely kind donations from 2024 and 2025. Your donations from the end of last year and the start of 2025 have given us a huge boost. We appreciate your support.”
Foundation de Franc
“Thank you for your kind donation. It will mean we can work with the Ipsen Foundation to produce a short MVA Society promotional video, which I think will make a big difference to our future success. Merci!"
Anonymous Donation
“Thank you so much for your wonderfully kind donation. It means a lot on a personal as well as MVA Society level. You and your husband are amazing people."