At the MVA Society, we know that personal stories are as important as scientific research. They help families feel less alone, inspire hope, and show the tangible impact of expert care and pioneering treatment.

Our Community and Stories hub shares first-person experiences from children, adults, and their families, through written accounts and video wherever possible. Each story is unique, and currently, we are proud to feature George’s Story, a powerful example of determination and medical innovation:

“We were told nothing could be done, but with the right people and bold decisions, we changed the outcome.” - Jonathan

At just two years old, George was diagnosed with a rare liver cancer - rhabdomyosarcoma - and an ultra-rare genetic condition, Mosaic Variegated Aneuploidy (MVA) Syndrome.

With determination and the support of experts like Professor Anil Dhawan, George underwent a pioneering two-stage operation using Nano Knife Technology - becoming the first child in the UK to receive this treatment on the liver. Today, George is fit, healthy, and thriving.