Newsletters
Our monthly round up of news
December 2025
In our first newsletter, there are updates on the big give Christmas challenge and our first charity Gala.
February 2026
George meets Keir Starmer and another family living with MVA, and Jonathan is named a Rare Disease Changemaker.
April 2026
Five of us take on the London Marathon 2026 and we give updates on the research programs and our fundraising efforts.
June 2026
Introducing our new patron, appearing on the Chris Evans breakfast show, Our inaugural MVA research conference, and a chance to win a CarFest prize.
August 2026
Tanner golf day, first ever MVA research conference, Oxford-Harrington Rare Disease Centre Symposium and the MVA Hackathon 2026.
September 2026
An illustrated children's book, running the Sydney Marathon, swimming the Serpentine, cycling from London to Brighton, and the Tanner Pharma golf day.
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