Because MVA is so rare, many clinicians may never have encountered it before. Our professional resources aim to make diagnosis and patient care clearer, while opening the door to collaboration with researchers and specialists worldwide.

Here you’ll find:

• Diagnostic guidance - Key information to support accurate identification of MVA.
• Expert input - How to contact our Medical Advisory Board or clinical experts for advice.
• Referrals and partnerships - Guidance for clinicians on referring patients, sharing data, or collaborating in research.

We’re actively developing new resources and guidance for clinicians, and this hub will be updated regularly. The needs of clinicians and professionals are still evolving, and by bringing professionals together, we can build a stronger foundation of knowledge that benefits every family affected by MVA and supports clinicians worldwide caring for patients with MVA.

What you see here is just the beginning - and we invite you to help shape what comes next and ensure our professional resources grow into a practical, comprehensive library.