Get Involved
Be part of the MVA journey
At the MVA Society, we’re building more than a charity - we’re building a community. A community of families, friends, clinicians, and supporters who share one goal: turning Mosaic Variegated Aneuploidy from an untreatable diagnosis into a condition with real treatment options.
Because MVA is so rare, every action counts. By joining us, you can make a tangible difference for families around the world - and help shape the future of research and support.
Every action matters. Every supporter helps shape the journey toward better treatments and finding a cure for families across the world.
Donate
Your donation makes a direct impact. Because many of our research projects are carried out free of charge by dedicated scientists, your support goes further - funding new studies, patient resources, and the growth of our community.
Fundraise
From sponsored challenges to cake sales, fundraising is a vital way to power our research and support programmes. Every pound raised helps accelerate studies, develop resources, and bring hope to families.
Join the community
Connect with other supporters, families, and researchers. Stay updated on the latest research, discoveries, and ways to help. Your involvement helps us understand what matters most to the MVA community and ensures our work is guided by those it affects.
Contribute to research
Research is at the heart of what we do. You can help by participating in studies, sharing patient data (if applicable), or connecting us with potential collaborators. Your involvement helps drive discoveries that could lead to real treatments. To do this, email us at info@mvasociety.org or complete the ‘contact us’ form
Get involved with MVA Society
Discover more ways in which you can make a difference