When your family is affected by MVA, information can feel hard to find - and even harder to trust. Our Information Hub brings together clear, accessible resources designed to help you understand the condition and feel more in control.

Here you’ll find:

• Fact sheets - Simple, reliable information on MVA
• Patient and family leaflets - designed to explain MVA in everyday language
• Visual guides and infographics - Easy-to-understand tools to help explain MVA to children, relatives, and schools
• Genetics explained - Resources to make sense of the science behind MVA

We’re actively developing new resources and guides, and will be updating this hub regularly. What you see here is just the start - and we invite you to help shape what comes next. We’re committed to expanding our resources with the needs of families at the heart, so in time, this our Information Hub will grow into a comprehensive library for families affected by MVA.

Is there a resource you’d like us to create? Get in touch and let us know.