Join Our Community

Connect, learn, and make a difference

At the MVA Society, our community is at the heart of everything we do. By joining, you can connect with families, patients, researchers, and supporters around the world - sharing experiences, staying informed, and helping shape the future of MVA care and research.

What You’ll Get as a Member

  • Updates on Research and News - Stay informed about the latest discoveries, studies, and breakthroughs
  • Early Access to Resources - Be among the first to access new fact sheets, guides, and patient support materials
  • Community Events and Campaigns - Participate in virtual or in-person events, fundraising challenges, and awareness campaigns
  • Opportunities to Contribute - Help us shape resources, give feedback, or even participate in research initiatives where appropriate

Ways People Have Engaged

  • Joining virtual Q&A sessions with medical experts
  • Participating in fundraising challenges to support research
  • Sharing personal stories to help guide resource development

How to Join

By joining the community, you’re helping ensure that MVA support grows in ways that truly meet the needs of families and professionals worldwide. To join, please fill in our contact form.

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