Who We Are

Dedicated to understanding and supporting those affected by Mosaic Variegated Aneuploidy (MVA) syndrome

The MVA Society has been set up as a patient advocacy site to establish a focal point for the ultra-rare genetic condition Mosaic Variegated Aneuploidy syndrome.

The aims of the MVA Society are 3-fold:

  • Provide support and information to patients & families affected
  • Create awareness and build an MVA community of patients, families & medics
  • Develop a research strategy to investigate treatment options