Ambassadors

Our ambassador programme enables the MVA Society to work with the wider rare disease community so we can learn from their expertise and experience.

 

Ambassadors help inform and support our projects, identify new opportunities & collaborations, expand our network and spread the word about MVA.

Communicating the lived experience of having a rare disease is fundamental to our 3 core goals – fundraising | research | awareness

Giovanni

Giovanni Monti

Giovanni has been a supporter of the MVA Society from its inception. Giovanni has vast experience in healthcare, having launched several healthcare innovations and facilitated longitudinal research programs in the U.S., UK and continental Europe.  A father of two, Giovanni is acutely aware of how precarious health can be, and is committed to supporting research on rare and ultra-rare diseases.

Hicham

Hicham Llaabi (Spain)

Father to his 2 amazing boys – Iyad and Amir – both diagnosed with MVA. Hicham was the first family we met and is actively helping with MVA research through the Vall d'Hebron Institute of Oncology (VHIO) in Barcelona.