Our story begins on 5 December 2013 in the city of Tangier, Morocco, with the birth of my first child, Iyad, who was very small in height and weight. For two years, many paediatricians were unable to diagnose Iyad’s condition, so we moved to the capital, Rabat, to no avail. Then we went to Valdemoro,…

When George was diagnosed with Mosaic Variegated Aneuploidy (MVA) at just 2 years old, his family was told there were no treatments, no specialists, and no reliable information to guide them. The condition was so rare that most doctors had never heard of it. His parents were left to navigate the frightening complexities of MVA…