Posts by benadmin
The MVA’s “Famous Five” take on the 2026 London Marathon
For some, its a first marathon. For others, its more of wanting to experience 26.2 miles of awesomeness again. The MVA Society is the first and only organisation in the world to focus research into this ultra-rare condition. In doing so, we will find a treatment for this condition and prevent related cancers. So, this…
Read MoreJonathan Bracey podcast with Every Connection Counts
Every Connection Counts is a global performance consultancy specialising in improving communication. In this deeply moving conversation, Jonathan speaks with host Toni Jennings about what it means to stay curious when the answers are hard, how resilience is a choice we make daily, and why he founded The MVA Society, a charity that’s now giving…
Read More1st Anniversary Dinner
On Wed 12th November, the MVA Society hosted their 1st Anniversary Charity Dinner at the prestigious RAC Club in London. The evening was superbly hosted by Hugh Brasher, CEO London Marathon. We were also fortunate to have Lisa Stevenson from Sotheby’s running our auction – which was a huge success raising a whopping £50k to…
Read MoreJonathan Bracey talks at GCSG Conference
Jonathan recently spoke at the Global Clinical Supplies Group (GCSG) Conference, giving the key note speech on the ‘patient voice’ – talking about George, his battle through cancer, his Mosaic Variegated Aneuploidy and formation of the MVA Society. The GCSG 2025 European Knowledge Forum (14–16 October, Budapest) convenes leaders in clinical supply and cell &…
Read MoreSuccess at the London Marathon
On Sunday 27th April, Tash, Saj and JB joined 50,000 other runners for the London Marathon. The difference though is that these 3 lucky runners were running for the MVA Society. Between us, we raised over £9,000 to support the first stages of this research strategy. But like running a marathon, to find a treatment…
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